|I am a mom,
advocate for my
son who is suffering
disease. In my quest
to find help and
hope for my son, I
promised him that I
would share what I
have learned with
|The Huntington's Post vision is to
reach people all over the world who
are battling Huntington's disease or
who are interested in helping;
provide credible yet interesting
stories; always reporting the truth
about what is in the news.
The HD community deserves to know
the who, what, where, when and
how about all that is going on in the
scientific, medical and advocacy
world of HD. I have set out to help
anyone who has our best interest at
heart and may Heaven help the
ones who do not.
Always in truth, light & love,
|Thank you for reading
The Huntington's Post
Ask Dear Gaby...
|TUNE IN TO
"Help4HD - The HD View"
DEAR GABY: I am a 31 year old man at-risk for HD and I am struggling with testing. I want
to have kids but I don’t want to pass on this horrible disease. Should I get tested? Thank
you for your help, MARTY W
DEAR MARTY, Getting tested for HD is an extremely personal choice. How old you are
and your family’s HD history are just the start.
DEAR GABY: My husband was recently diagnosed with Huntington’s disease which is so
devastating because we didn’t even know he had a family history of it. You see, he was
adopted and never knew his biological parents. We have been married for ten years and
have three young children, now all are at risk for HD. My heart is broken...
DEAR ANNA: In my opinion it is best for parents to talk with their children about HD as
early as possible. Lies and omissions are unhealthy in any relationship particularly
between a parent and child. As in conversations about sexuality, parents want their
|Faces of Huntington's
By Carmen Leal
DEAR GABY: My husband has been sick with HD for ten years now. My younger she put
her feelings to the side to help us manage her dad? Susan
DEAR Susan, it is very fortunate that your husband has a support system. Some people
with HD are isolated and alone. In spite of that, there could be many reasons why your
older daughter is not able to support her dad’s needs.
DEAR GABY: I was a caregiver for my sick husband who died ten years ago, and I have
two at-risk children. I have always been so anxious about my children’s risk status and feel
like I have no hope for them. I can’t talk with them about HD. Can you please help me?
DEAR Anxious: You are not alone in your fear. The HD that your husband experienced
was a long and difficult process filled with a lack of understanding of the why or how he
behaved the way that he did. And, thinking every moment about your children’s risk was
no doubt very stressful for him, too.
DEAR GABY: My mother is sick and dying with HD, and my father just had a feeding tube
put in. I don’t know if I want that for her. What do you think I should do? From a concerned
DEAR Concerned Daughter: This is a very important question and goes to the core of
who people are. Some people feel that they only want to live if they are breathing on their
own. Others feel that if science will permit them to continue to live, maybe they will use
that to try and recover or even to be able just to stay alive longer. Some family members
feel that refusing to give a feeding tube is “playing God.” Others feel that the person
who's sick is suffering, and they do not want to prolong that suffering.